Update

Taeya just had her artery line removed.  This is great as it's quite uncomfortable.  We were hopeful that the chest tubes would come out later today, but that's not going to happen.  Her feed earlier today has increased the fluid coming from her lungs and the area around her heart.  They have to remove all fat from her diet now and put her on a specially made formula called Enfaport.  It's made by Enfamil and not available in stores.  It doesn't taste great, so if need be, they will add protein flakes that taste like banana to get her to eat it.

She's sound asleep now under the heart blanket Mommy Faith gave her.  When we have the pleasure of helping the next Ds mommy with a baby going into heart surgery, we will pass "The Faith Blanket" on.  If I had a create bone in my body, I would affix a little label with Faith and Taeya's name and their birth dates and hope it would be added to over time.

Linda